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National Disability Insurance Scheme (NDIS) Costs

Submissions

Submissions received for the National Disability Insurance Scheme (NDIS) Costs commissioned study.

* Submissions marked with an asterisk have omitted 'In confidence' content - part or all of the submission is not online.

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Submissions received before the release of the position paper are listed here.
No. Name Pages Received
1 Bus Association Victoria (PDF - 834.8 KB) 16 15/02/2017
2 Richard Kennedy (PDF - 120.9 KB) 2 20/02/2017
3a Lifestyle in Supported Accommodation (LISA) Inc (PDF - 175.8 KB) 3 07/03/2017
  Lifestyle in Supported Accommodation (LISA) Inc (Word - 54.0 KB)    
3b Lifestyle in Supported Accommodation (LISA) Inc (PDF - 158.0 KB) 3 20/03/2017
  Lifestyle in Supported Accommodation (LISA) Inc (Word - 53.5 KB)    
3c Lifestyle in Supported Accommodation (LISA) Inc (PDF - 124.3 KB) 2 21/03/2017
  Lifestyle in Supported Accommodation (LISA) Inc (Word - 50.5 KB)    
4 Name withheld (PDF - 16.8 KB) 2 08/03/2017
  Name withheld (Word - 19.0 KB)    
5 Name withheld (PDF - 88.5 KB) 2 11/03/2017
  Name withheld (Word - 31.1 KB)    
6 Mallee Track Health and Community Service (MTHCS) (PDF - 116.3 KB) 4 13/03/2017
  Mallee Track Health and Community Service (MTHCS) (Word - 24.4 KB)    
7 Matt Burrows (PDF - 112.8 KB) 6 15/03/2017
  Matt Burrows (Word - 36.5 KB)    
8 Mental Health and NDIS Facebook Support Group (PDF - 394.3 KB) 5 16/03/2017
9 Disability Services Australia (DSA) (PDF - 549.4 KB) 13 15/03/2017
Attachment * in confidence content omitted - -
10 Alzheimer's Australia (PDF - 457.3 KB) 18 22/03/2017
11 Community Mental Health Australia (CMHA) (PDF - 560.0 KB) 17 22/03/2017
12 Regional Development Australia Murraylands and Riverland (RDAMR) (PDF - 216.0 KB) 2 22/03/2017
13 Goldfields Individual and Family Support Association Inc (GIFSA) (PDF - 143.8 KB) 12 22/03/2017
14 Tony Wilson (PDF - 101.5 KB) 2 22/03/2017
  Tony Wilson (Word - 30.3 KB)    
15 Occupational Therapy Australia (OTA) (PDF - 206.1 KB) 6 23/03/2017
  Occupational Therapy Australia (OTA) (Word - 87.7 KB)    
16 Sisters Inside Inc (PDF - 200.9 KB) 8 23/03/2017
17 Fergus Nelson (PDF - 35.7 KB) 1 17/03/2017
  Fergus Nelson (Word - 13.6 KB)    
18 NSW Disability Network Forum (PDF - 459.0 KB) 7 23/03/2017
19 Australian Psychological Society (APS) (PDF - 186.2 KB) 4 23/03/2017
20 Travellers Aid Australia (TAA) (PDF - 124.3 KB) 5 23/03/2017
  Travellers Aid Australia (TAA) (Word - 65.7 KB)    
21 Vanessa Fanning (PDF - 204.5 KB) 9 23/03/2017
  Vanessa Fanning (Word - 30.0 KB)    
Attachment A: First correspondence from Chris Bourke MLA (PDF - 111.3 KB) 1 23/03/2017
Attachment B:Second correspondence from Chris Bourke MLA (PDF - 83.8 KB) 2 23/03/2017
Attachment C:Third correspondence from Chris Bourke MLA (PDF - 116.2 KB) 2 23/03/2017
22 Anna Yanga (PDF - 815.0 KB) 6 23/03/2017
  Anna Yanga (Word - 1.0 MB)    
23 Rehab Co (PDF - 85.5 KB) 2 23/03/2017
  Rehab Co (Word - 31.8 KB)    
24 Suzanne Read (PDF - 89.3 KB) 2 23/03/2017
  Suzanne Read (Word - 15.1 KB)    
25 YFS Ltd * in confidence content omitted - -
26 Hannah Potapczyk (PDF - 41.9 KB) 1 23/03/2017
  Hannah Potapczyk (Word - 27.6 KB)    
27 Michael Boyle (PDF - 120.0 KB) 9 22/03/2017
  Michael Boyle (Word - 33.5 KB)    
28 Australian Rehabilitation Providers Association (PDF - 108.7 KB) 2 23/03/2017
  Australian Rehabilitation Providers Association (Word - 76.5 KB)    
29 Physical Disability Council of NSW (PDF - 250.2 KB) 7 23/03/2017
  Physical Disability Council of NSW (Word - 167.9 KB)    
30 Neurological Alliance Australia (NAA) (PDF - 222.8 KB) 6 23/03/2017
  Neurological Alliance Australia (NAA) (Word - 198.6 KB)    
31 Ethnic Communities’ Council of Victoria (ECCV) (PDF - 350.6 KB) 3 24/03/2017
32 AEIOU Foundation for children with autism (PDF - 915.2 KB) 10 23/03/2017
Attachment A: Cost-Benefit Analysis of Providing Early Intervention to Children with Autism (PDF - 321.9 KB) 42 23/03/2017
Attachment B: A Pilot Study of the Effects of an Australian Centre-Based Early Intervention Program for Children with Autism (PDF - 679.0 KB) 8 23/03/2017
Attachment C: Early Intervention for Children with Autism Spectrum Disorders: 'Guidelines for Good Practice' 2012 (PDF - 739.8 KB) 25 23/03/2017
33 Assistive Technology Suppliers Australasia (PDF - 743.5 KB) 11 24/03/2017
34 Annecto – the people network (PDF - 296.2 KB) 5 24/03/2017
35 Disability Services Commissioner (PDF - 211.1 KB) 8 24/03/2017
36 Penny Manning (PDF - 168.3 KB) 6 24/03/2017
37 Allied Health Professions Australia (PDF - 329.4 KB) 19 24/03/2017
38 Physical Disability Australia Ltd (PDF - 511.6 KB) 18 24/03/2017
39 Belconnen Community Service Board (PDF - 173.3 KB) 5 24/03/2017
  Belconnen Community Service Board (Word - 63.8 KB)    
40 Gwynnyth Llewellyn (PDF - 258.0 KB) 8 24/03/2017
  Gwynnyth Llewellyn (Word - 4.2 MB)    
41 Sarah Martin * in confidence content omitted - -
42 Allianz Australia Insurance Limited (PDF - 508.6 KB) 11 24/03/2017
43 Centre for Disability Studies (PDF - 170.0 KB) 3 24/03/2017
Attachment: What does the NDIS mean for me? An Inclusive Research approach to exploring the views of people with disability (PDF - 1.8 MB) 19 24/03/2017
44 Centacare Brisbane (PDF - 26.2 KB) 3 24/03/2017
  Centacare Brisbane (Word - 23.2 KB)    
45 MND Australia (PDF - 163.7 KB) 16 24/03/2017
  MND Australia (Word - 268.5 KB)    
46 Office of the Public Advocate (OPA) (PDF - 163.3 KB) 3 24/03/2017
47 Mamre Association Inc (PDF - 134.6 KB) 3 24/03/2017
  Mamre Association Inc (Word - 1.8 MB)    
48 Australian Blindness Forum (ABF) (PDF - 120.0 KB) 18 24/03/2017
  Australian Blindness Forum (ABF) (Word - 63.4 KB)    
49 Centre for Disability Studies (CDS) (PDF - 506.1 KB) 3 24/03/2017
50 cohealth (PDF - 192.9 KB) 13 24/03/2017
51 National Disability Services (NDS) (PDF - 199.9 KB) 17 24/03/2017
  National Disability Services (NDS) (Word - 216.4 KB)    
52 Australasian Podiatry Council (APodC) (PDF - 201.9 KB) 3 24/03/2017
53 Sharing Places Inc (PDF - 157.0 KB) 5 24/03/2017
  Sharing Places Inc (Word - 1.8 MB)    
54 Australian Lawyers Alliance (ALA) (PDF - 410.3 KB) 26 24/03/2017
55 Jennifer Smith-Merry (PDF - 197.4 KB) 6 24/03/2017
56 Public Service Research Group (UNSW) (PDF - 149.9 KB) 13 24/03/2017
  Public Service Research Group (UNSW) (Word - 109.3 KB)    
57 Macarthur Disability Services (PDF - 58.4 KB) 9 24/03/2017
  Macarthur Disability Services (Word - 67.0 KB)    
58 Maurice Blackburn Lawyers (PDF - 912.9 KB) 18 24/03/2017
59 Homelife Association Inc (PDF - 637.7 KB) 11 24/03/2017
  Homelife Association Inc (Word - 484.2 KB)    
60 New South Wales Government (PDF - 516.9 KB) 19 27/03/2017
61 Spinal Cord Injuries Australia (SCIA) (PDF - 210.7 KB) 7 24/03/2017
  Spinal Cord Injuries Australia (SCIA) (Word - 70.6 KB)    
62a Ability First Australia (PDF - 246.1 KB) 1 24/03/2017
62b Ability First Australia (PDF - 821.6 KB) 29 24/03/2017
62c Ability First Australia (PDF - 662.4 KB) 10 24/03/2017
63 Neami National (PDF - 205.0 KB) 11 24/03/2017
  Neami National (Word - 137.2 KB)    
64 Calvary Health Care Bethlehem (PDF - 452.0 KB) 3 24/03/2017
65 The Australian Centre for Social Innovation (TACSI) (PDF - 267.5 KB) 10 24/03/2017
Attachment: NDIS readiness and beyond (PDF - 1.7 MB) 34 24/03/2017
66 James Condren (PDF - 42.1 KB) 6 24/03/2017
  James Condren (Word - 15.3 KB)    
67 Sotica (PDF - 173.2 KB) 10 07/04/2017
Attachment: Service providers; the NDIS and conflicts of interest (PDF - 87.8 KB) 3 07/04/2017
68 Liza Maloney (PDF - 204.1 KB) 2 22/03/2017
  Liza Maloney (Word - 229.6 KB)    
69 Centre of Research Excellence in Disability and Health (PDF - 211.6 KB) 5 24/03/2017
  Centre of Research Excellence in Disability and Health (Word - 59.5 KB)    
70 Epic Employment Service Inc (PDF - 164.6 KB) 5 24/03/2017
  Epic Employment Service Inc (Word - 29.0 KB)    
71 Social Support & Precarious Workforce Research Discussion Group, RMIT (PDF - 551.6 KB) 10 24/03/2017
72 Scope Australia Ltd (PDF - 1006.8 KB) 30 24/03/2017
73 SDN Children’s Services (PDF - 168.4 KB) 5 24/03/2017
  SDN Children’s Services (Word - 40.1 KB)    
74 Flourish Australia (PDF - 109.1 KB) 18 24/03/2017
75 Macular Disease Foundation Australia (PDF - 140.0 KB) 8 24/03/2017
76 Community and Public Sector Union (CPSU) (PDF - 454.6 KB) 20 24/03/2017
77 Community Services Industry Alliance (CSIA) (PDF - 645.0 KB) 7 24/03/2017
78 Butterfly Foundation (PDF - 433.7 KB) 5 27/03/2017
Attachment A: Paying the Price - The economic and social impact of eating disorders in Australia (PDF - 4.6 MB) 136 27/03/2017
Attachment B: Investing in Need: Cost-effective interventions for eating disorders (PDF - 3.1 MB) 78 27/03/2017
79 Cheryl McDonnell (PDF - 112.7 KB) 3 24/03/2017
  Cheryl McDonnell (Word - 20.0 KB)    
80 Belinda Jane (PDF - 202.5 KB) 12 24/03/2017
  Belinda Jane (Word - 41.4 KB)    
81 Westhaven Association (PDF - 149.9 KB) 5 24/03/2017
  Westhaven Association (Word - 39.0 KB)    
82 Royal Society for the Blind (RSB) (PDF - 109.3 KB) 2 24/03/2017
  Royal Society for the Blind (RSB) (Word - 24.3 KB)    
Attachment A: Royal Society for the Blind (RSB) submission to the Disability Care and Support inquiry (PDF - 310.5 KB) 18 24/03/2017
  Attachment A: Royal Society for the Blind (RSB) submission to the Disability Care and Support inquiry (Word - 479.0 KB)    
Attachment B: Australian Blind Society Submission to the Disability Care and Support Inquiry (PDF - 277.3 KB) 26 24/03/2017
  Attachment B: Australian Blind Society Submission to the Disability Care and Support Inquiry (Word - 153.5 KB)    
83 Independent Schools Council of Australia (ISCA) (PDF - 810.7 KB) 9 27/03/2017
84 Companion House (PDF - 208.7 KB) 3 24/03/2017
  Companion House (Word - 101.1 KB)    
85 Barnardos Australia (PDF - 206.6 KB) 5 24/03/2017
86 Syndromes Without A Name (SWAN) Australia (PDF - 112.3 KB) 2 24/03/2017
  Syndromes Without A Name (SWAN) Australia (Word - 59.6 KB)    
87 ACT Disability Aged Carer and Advocacy Service (ADACAS) (PDF - 464.6 KB) 24 27/03/2017
88 Communication Rights Australia, Disability Discrimination Legal Service and Villamanta Disability Rights Legal Service (PDF - 263.7 KB) 7 27/03/2017
Attachment: Evidence for Effectiveness of ABA as a Treatment for Autism (PDF - 415.4 KB) 10 27/03/2017
89 Michael Taggart (PDF - 101.1 KB) 5 24/03/2017
  Michael Taggart (Word - 24.5 KB)    
90 NSW Disability support organisation (PDF - 144.5 KB) 5 22/03/2017
Attachment * in confidence content omitted - -
91 Business Council of Co-operatives and Mutuals (PDF - 162.3 KB) 5 28/03/2017
  Business Council of Co-operatives and Mutuals (Word - 102.6 KB)    
92 Every Australian Counts (PDF - 1.5 MB) 26 24/03/2017
  Every Australian Counts (Word - 6.4 MB)    
93 Australian Physiotherapy Association (PDF - 438.5 KB) 29 24/03/2017
94 Milner & Clyde (PDF - 92.0 KB) 4 24/03/2017
95 Royal Institute for Deaf and Blind Children (PDF - 464.9 KB) 9 29/03/2017
  Royal Institute for Deaf and Blind Children (Word - 614.2 KB)    
96 Bravo Ability Service (PDF - 241.7 KB) 8 24/03/2017
  Bravo Ability Service (Word - 782.6 KB)    
Attachment: Graph – Disability rate by age – 2009 and 2012 (PDF - 64.9 KB) 1 24/03/2017
97 Lifestart Co-operative Ltd (PDF - 336.7 KB) 22 29/03/2017
98 Financial Services Council (FSC) (PDF - 419.2 KB) 19 29/03/2017
Attachment * in confidence content omitted - -
99 Integra (PDF - 154.1 KB) 9 23/03/2017
  Integra (Word - 38.3 KB)    
Attachment: Financial Management Services in Participant Direction Programs (PDF - 523.1 KB) 14 23/03/2017
100 Bruce Bonyhady (PDF - 250.6 KB) 19 29/03/2017
  Bruce Bonyhady (Word - 59.3 KB)    
101 Richard Madden (PDF - 450.8 KB) 15 24/03/2017
  Richard Madden (Word - 916.4 KB)    
102 Top End Association for Mental Health Inc (PDF - 3.9 MB) 22 24/03/2017
103 Ross Fear (PDF - 73.9 KB) 2 29/03/2017
  Ross Fear (Word - 26.0 KB)    
104 House with No Steps (PDF - 66.3 KB) 6 27/03/2017
105 Hopkins Centre: Research for Rehabilitation and Resilience (PDF - 238.4 KB) 8 27/03/2017
  Hopkins Centre: Research for Rehabilitation and Resilience (Word - 229.3 KB)    
106 Coralee O'Rourke MP (PDF - 124.3 KB) 2 27/03/2017
107 The Shepherd Centre (PDF - 490.5 KB) 28 24/03/2017
  The Shepherd Centre (Word - 942.4 KB)    
108 Noah’s Ark Inc (PDF - 525.4 KB) 13 28/03/2017
109 The Able Movement (PDF - 184.2 KB) 7 28/03/2017
110 James Morton (PDF - 265.8 KB) 9 23/03/2017
  James Morton (Word - 460.7 KB)    
111 Women with Disabilities Victoria (PDF - 317.8 KB) 2 30/03/2017
112 Prader-Willi Syndrome Association of Australia Inc (PDF - 332.5 KB) 7 24/03/2017
  Prader-Willi Syndrome Association of Australia Inc (Word - 292.7 KB)    
113 Summer Foundation (PDF - 462.2 KB) 35 30/03/2017
  Summer Foundation (Word - 142.3 KB)    
114 Leanne Dowse, Melinda Paterson and Mike Sprange (PDF - 165.7 KB) 7 24/03/2017
  Leanne Dowse, Melinda Paterson and Mike Sprange (Word - 73.0 KB)    
115 Queensland Advocacy Incorporated (PDF - 436.7 KB) 19 30/03/2017
116 Brain Injury SA (PDF - 399.6 KB) 19 24/03/2017
117 Jesuit Social Services (PDF - 198.2 KB) 11 31/03/2017
118 United Voice (PDF - 572.2 KB) 15 31/03/2017
119 Dietitians Association of Australia (PDF - 314.1 KB) 7 31/03/2017
120 Australian Medical Association (PDF - 138.3 KB) 5 31/03/2017
121 Down Syndrome Australia (PDF - 727.2 KB) 22 31/03/2017
122 Mental Illness Fellowship of Australia (PDF - 383.1 KB) 20 31/03/2017
123 Australian Orthotic Prosthetic Association (PDF - 388.4 KB) 8 24/03/2017
124 Australian Association of Social Workers (PDF - 245.7 KB) 6 24/03/2017
  Australian Association of Social Workers (Word - 683.6 KB)    
125 Freedom Key Pty Ltd (PDF - 202.7 KB) 5 29/03/2017
  Freedom Key Pty Ltd (Word - 5.2 MB)    
Attachment: Freedom Housing Versus Traditional Models of Care and Accommodation For Persons With Disabilities (PDF - 448.8 KB) 5 29/03/2017
  Attachment: Freedom Housing Versus Traditional Models of Care and Accommodation For Persons With Disabilities (Word - 6.7 MB)    
126 Plan Management Partners (PDF - 211.2 KB) 16 30/03/2017
127 Deafness Forum of Australia (PDF - 409.9 KB) 32 31/03/2017
128 Leadership Plus (PDF - 158.5 KB) 4 31/03/2017
  Leadership Plus (Word - 27.5 KB)    
129 Early Childhood Intervention Australia Victoria/Tasmania Limited (PDF - 246.9 KB) 15 31/03/2017
130 Blind Citizens Australia (PDF - 211.5 KB) 18 03/04/2017
  Blind Citizens Australia (Word - 79.3 KB)    
131 Carers Australia Victoria (PDF - 793.9 KB) 54 31/03/2017
132 Health Services Union (PDF - 1.0 MB) 21 31/03/2017
133 Everyday Independence Pty Ltd (PDF - 617.5 KB) 7 31/03/2017
134 Public Health Association of Australia (PDF - 468.4 KB) 12 29/03/2017
135 Mental Health Community Coalition of the ACT (PDF - 404.2 KB) 35 31/03/2017
  Mental Health Community Coalition of the ACT (Word - 902.1 KB)    
136 Speech Pathology Australia (PDF - 962.8 KB) 52 31/03/2017
137 Commonwealth Ombudsman (PDF - 640.7 KB) 17 24/03/2017
Attachment * in confidence content omitted - -
138 ACT Council of Social Service Inc (PDF - 218.4 KB) 18 31/03/2017
  ACT Council of Social Service Inc (Word - 118.6 KB)    
139 Power Housing Australia (PDF - 702.7 KB) 7 03/04/2017
140 Tricia Curley (PDF - 64.4 KB) 7 29/03/2017
  Tricia Curley (Word - 30.9 KB)    
141 Attendant Care Industry Association (ACIA) (PDF - 165.9 KB) 7 24/03/2017
  Attendant Care Industry Association (ACIA) (Word - 1.1 MB)    
142 Capricorn Community Development Association Inc (CCDA) (PDF - 313.7 KB) 13 03/04/2017
  Capricorn Community Development Association Inc (Word - 87.8 KB)    
143 Office of the Public Guardian (OPG) (PDF - 555.3 KB) 4 04/04/2017
144 Mind Australia Limited (PDF - 896.1 KB) 14 03/04/2017
145 Anglicare Tasmania (PDF - 715.2 KB) 60 31/03/2017
Attachment: Research report - The Uncounted Costs: Choice and Control for People with Behaviours of Concern (PDF - 915.8 KB) 47 31/03/2017
146 Department of Social Services (DSS) (PDF - 558.5 KB) 40 04/04/2017
  Department of Social Services (DSS) (Word - 2.2 MB)    
147 Jacqueline Pierce and Associates (PDF - 118.0 KB) 7 03/04/2017
148 Frank Lawrence Peterson (PDF - 935.6 KB) 10 25/03/2017
149 NDIS Independent Advisory Council (PDF - 211.0 KB) 23 03/04/2017
150 Kirsty Magarey (PDF - 132.2 KB) 6 05/04/2017
  Kirsty Magarey (Word - 26.5 KB)    
151 Western Australian Local Government Association (WALGA) (PDF - 746.0 KB) 3 28/03/2017
152 Municipal Association of Victoria (MAV) (PDF - 201.8 KB) 3 05/04/2017
153 National Mental Health Commission (NMHC) (PDF - 146.5 KB) 8 20/03/2017
  National Mental Health Commission (NMHC) (Word - 177.4 KB)    
154 Australian Services Union (ASU) (PDF - 190.8 KB) 15 05/04/2017
  Australian Services Union (ASU) (Word - 315.8 KB)    
155 Mental Health Australia (PDF - 254.8 KB) 26 05/04/2017
Attachment: The implementation and operation of the psychiatric disability elements of the NDIS (PDF - 3.2 MB) 42 05/04/2017
156 ACT Government (PDF - 901.9 KB) 30 04/04/2017
Attachment: Cover letter from Rachel Stephen-Smith MLA (PDF - 84.5 KB) 4 04/04/2017
157 Anglicare Australia (PDF - 838.1 KB) 21 05/04/2017
Attachment 1: Submission to Joint Standing Committee on the NDIS inquiry into the provision of services under the NDIS for people with a psychosocial disability relating to a mental health condition (PDF - 437.5 KB) 8 06/04/2017
Attachment 2: Submission to Joint Standing Committee on the NDIS inquiry into the provision of services under the NDIS for people with a psychosocial disability relating to a mental health condition (continued) (PDF - 592.6 KB) 7 06/04/2017
Attachment 3: Submission to Joint Standing Committee on the NDIS inquiry into the provision of services under the NDIS for people with a psychosocial disability relating to a mental health condition (continued) (PDF - 888.4 KB) 13 06/04/2017
Attachment 4: Is the NDIS Reasonable Cost Methodology reasonable? (PDF - 718.1 KB) 10 06/04/2017
158 The Royal Australian and New Zealand College of Psychiatrists (RANZCP) (PDF - 354.0 KB) 12 05/04/2017
159 Woden Community Service (PDF - 967.7 KB) 36 01/04/2017
160 Amaze (PDF - 527.4 KB) 27 06/04/2017
161 National Disability Insurance Agency (NDIA) (PDF - 989.1 KB) 122 06/04/2017
  National Disability Insurance Agency (NDIA) (Word - 544.8 KB)    
162 Victorian Aboriginal Community Controlled Health Organisation (PDF - 1.0 MB) 22 06/04/2017
163 Cerebral Palsy Alliance (PDF - 91.0 KB) 1 24/03/2017
Attachment 1: CPA response to specific PC Issues paper (PDF - 170.0 KB) 6 24/03/2017
Attachment 2: CPA – NDIS Issues Paper (PDF - 300.4 KB) 10 24/03/2017
164 Mental Health Complaints Commissioner (PDF - 134.2 KB) 2 03/04/2017
165 Disabled People's Organisations Australia (PDF - 383.4 KB) 15 02/04/2017
  Disabled People's Organisations Australia (Word - 164.8 KB)    
166 Catholic Social Services Australia (PDF - 203.4 KB) 11 31/03/2017
  Catholic Social Services Australia (Word - 176.9 KB)    
167 Victorian Mental Illness Awareness Council (PDF - 278.1 KB) 10 06/04/2017
  Victorian Mental Illness Awareness Council (Word - 92.8 KB)    
168 Legacy Australia (PDF - 283.0 KB) 4 03/04/2017
169 VICSERV (PDF - 397.0 KB) 15 06/04/2017
170 Round squared (PDF - 98.0 KB) 13 06/04/2017
171 Windsor & Associates (PDF - 83.0 KB) 7 07/04/2017
172 Victorian Healthcare Association (PDF - 506.5 KB) 9 07/04/2017
173 Australian Unity Limited (PDF - 255.5 KB) 17 07/04/2017
174 Victorian Government (PDF - 407.5 KB) 30 07/04/2017
Attachment: Cover letter from Treasurer Tim Pallas MP (PDF - 70.8 KB) 2 07/04/2017
175 Department of Health (PDF - 202.7 KB) 6 07/04/2017
176 Victorian Council of Social Service (VCOSS) (PDF - 1.4 MB) 32 07/04/2017
177 David Parkin (PDF - 222.0 KB) 13 24/03/2017
  David Parkin (Word - 76.5 KB)    
178 Autism Aspergers Advocacy Australia (PDF - 531.7 KB) 38 29/03/2017
179 One Door Mental Health (PDF - 298.3 KB) 14 30/03/2017
180 Australian Federation of Disability Organisations (PDF - 368.4 KB) 16 31/03/2017
  Australian Federation of Disability Organisations (Word - 2.6 MB)    
181 Mental Health Carers Australia (PDF - 164.7 KB) 16 09/04/2017
182 DARE Disability Support (PDF - 229.2 KB) 19 24/03/2017
183 Deaf Australia Inc (PDF - 1.2 MB) 34 11/04/2017
184 Better Caring Pty Ltd (PDF - 808.5 KB) 11 11/04/2017
185 Inclusion Australia (PDF - 173.9 KB) 31 11/04/2017
186 JFA Purple Orange (PDF - 640.5 KB) 25 07/04/2017
187 Young People In Nursing Homes National Alliance (PDF - 311.1 KB) 58 18/04/2017
188 Children and Young People with Disability Australia (CYDA) (PDF - 676.5 KB) 35 13/04/2017
189 Brotherhood of St Laurence * in confidence content omitted - -
190 Early Childhood Intervention Australia (ECIA) NSW/ACT (PDF - 77.0 KB) 8 28/03/2017
  Early Childhood Intervention Australia (ECIA) NSW/ACT (Word - 87.9 KB)    
191 Jobsupport (PDF - 618.6 KB) 37 18/04/2017
192 Sylvanvale (PDF - 976.1 KB) 11 24/03/2017
193 NSW Council for Intellectual Disability (NSWCID) (PDF - 474.9 KB) 14 19/04/2017
194 LINK Community Transport (PDF - 353.4 KB) 2 19/04/2017
195 Carers Australia (PDF - 1.1 MB) 22 20/04/2017
196 DUO Services Australia (PDF - 183.4 KB) 5 24/03/2017
197 Lutheran Community Care Queensland (PDF - 754.4 KB) 21 22/04/2017
198 Australian Services Union (ASU) and Disabled People's Organisations Australia (DPOA) (PDF - 227.6 KB) 2 26/04/2017
199 Name withheld * in confidence content omitted - -
200 Royal Australian College of General Practitioners (RACGP) (PDF - 207.4 KB) 3 06/04/2017
201 Governments of Victoria, Queensland, South Australia, and the ACT (PDF - 448.1 KB) 4 26/04/2017
202 Endeavour Foundation (PDF - 445.2 KB) 15 09/05/2017
203 South Australian Government (PDF - 162.8 KB) 20 11/05/2017
204 Broken Rites (PDF - 269.7 KB) 31 24/04/2017
  Broken Rites (Word - 113.0 KB)    
205 Northern Territory Government (PDF - 313.5 KB) 9 17/05/2017
206 Elizabeth Zemanek (PDF - 83.9 KB) 2 24/03/2017
  Elizabeth Zemanek (Word - 29.9 KB)    

Post-position paper submissions (166)

Submissions received after the release of the position paper are listed here.
No. Name Pages Received
PP207 Inclusion Melbourne (PDF - 319.4 KB) 13 15/06/2017
PP208 James Condren * in confidence content omitted - -
PP209 Melisa Menzel (PDF - 87.3 KB) 3 30/06/2017
PP210 Vision Australia (PDF - 199.1 KB) 10 29/06/2017
PP211 McAuley Community Services for Women (PDF - 206.7 KB) 3 30/06/2017
PP212 Tandem Inc (PDF - 556.7 KB) 14 03/07/2017
PP213 Interaction Disability Services Ltd (PDF - 545.9 KB) 3 03/07/2017
  Interaction Disability Services Ltd (Word - 72.3 KB)    
PP214 Australasian Sleep Association (PDF - 154.8 KB) 1 03/07/2017
  Australasian Sleep Association (Word - 128.1 KB)    
PP215 Name withheld (PDF - 239.6 KB) 5 30/06/2017
PP216 Nardy House Inc (PDF - 122.2 KB) 2 04/07/2017
  Nardy House Inc (Word - 210.5 KB)    
PP217 Livecare Australia (PDF - 83.5 KB) 1 05/07/2017
  Livecare Australia (Word - 27.7 KB)    
PP218 Multiple Sclerosis Network of Care Australia (PDF - 120.4 KB) 7 07/07/2017
  Multiple Sclerosis Network of Care Australia (Word - 37.3 KB)    
PP219 Autism Association of Western Australia (PDF - 234.3 KB) 14 07/07/2017
PP220 Quality Living Options Bendigo Inc (PDF - 517.4 KB) 4 08/07/2017
  Quality Living Options Bendigo Inc (Word - 158.0 KB)    
PP221 Mental Illness Fellowship of WA (MIFWA) (PDF - 223.0 KB) 5 08/07/2017
  Mental Illness Fellowship of WA (MIFWA) (Word - 36.9 KB)    
PP222 Mallee Track Health & Community Service (MTHCS) (PDF - 447.1 KB) 5 09/07/2017
PP223 Victorian Aboriginal Community Controlled Health Organisation (VACCHO) (PDF - 900.0 KB) 5 10/07/2017
PP224 Carers Australia (PDF - 367.8 KB) 13 10/07/2017
PP225 Nulsen Disability Services * in confidence content omitted - -
PP226 Margaret Ryan (PDF - 113.8 KB) 2 09/07/2017
  Margaret Ryan (Word - 26.4 KB)    
PP227 Ubercare Services Pty Ltd (PDF - 451.6 KB) 9 10/07/2017
PP228 Prader-Willi Syndrome Association of Australia Inc (PDF - 609.4 KB) 9 11/07/2017
  Prader-Willi Syndrome Association of Australia Inc (Word - 157.4 KB)    
PP229 Australian Psychological Society (PDF - 171.8 KB) 4 11/07/2017
PP230 New South Wales Government (PDF - 174.6 KB) 13 11/07/2017
  New South Wales Government (Word - 54.8 KB)    
PP231 Regional Development Australia Murraylands & Riverland (RDAMR) (PDF - 364.3 KB) 4 11/07/2017
PP232 Parkinson’s Australia (PDF - 675.8 KB) 18 11/07/2017
  Parkinson’s Australia (Word - 159.2 KB)    
PP233 MJD Foundation (PDF - 233.9 KB) 13 11/07/2017
PP234 New South Wales Council for Intellectual Disability (NSWCID) (PDF - 163.6 KB) 6 11/07/2017
PP235 Syndromes Without a Name (SWAN) (PDF - 573.9 KB) 3 11/07/2017
  Syndromes Without a Name (SWAN) (Word - 252.2 KB)    
PP236 Jenny Harrison (PDF - 119.3 KB) 5 11/07/2017
  Jenny Harrison (Word - 34.4 KB)    
PP237 Name Withheld (PDF - 143.9 KB) 6 11/07/2017
  Name Withheld (Word - 43.5 KB)    
PP238 Legacy Australia Incorporated (PDF - 97.5 KB) 2 12/07/2017
PP239 Paraplegic and Quadriplegic Association of NSW (ParaQuad NSW) (PDF - 212.3 KB) 7 11/07/2017
  Paraplegic and Quadriplegic Association of NSW (ParaQuad NSW) (Word - 25.3 KB)    
PP240 Queensland Nurses and Midwives’ Union (QNMU) (PDF - 342.2 KB) 8 12/07/2017
PP241 Office of the Public Advocate (PDF - 110.9 KB) 4 12/07/2017
PP242 Speaking Up For You (PDF - 256.0 KB) 5 12/07/2017
  Speaking Up For You (Word - 47.2 KB)    
PP243 Macular Disease Foundation Australia (PDF - 95.9 KB) 7 12/07/2017
PP244 APC Prosthetics Pty Ltd (PDF - 617.8 KB) 4 12/07/2017
PP245 Legal Aid NSW (PDF - 630.9 KB) 16 12/07/2017
PP246 Flourish Australia (PDF - 603.8 KB) 10 12/07/2017
PP247 Tasmanian Government (PDF - 638.9 KB) 12 11/07/2017
PP248 Bernadette Cheesman (PDF - 105.5 KB) 4 12/07/2017
  Bernadette Cheesman (Word - 17.5 KB)    
PP249 Early Childhood Intervention Australia (PDF - 176.2 KB) 6 12/07/2017
  Early Childhood Intervention Australia (Word - 27.5 KB)    
PP250 Ella Centre (PDF - 184.4 KB) 5 12/07/2017
  Ella Centre (Word - 20.4 KB)    
Attachment: Ella Centre’s submission to the NDIA on their Price Control review (PDF - 161.0 KB) 8 12/07/2017
  Attachment: Ella Centre’s submission to the NDIA on their Price Control review (Word - 33.9 KB)    
PP251 Community Services Industry Alliance (CSIA) (PDF - 556.9 KB) 4 12/07/2017
  Community Services Industry Alliance (CSIA) (Word - 136.8 KB)    
PP252 Vision Australia (PDF - 199.1 KB) 14 12/07/2017
  Vision Australia (Word - 104.0 KB)    
PP253 Youngcare (PDF - 51.0 KB) 4 12/07/2017
PP254 Orygen (PDF - 145.0 KB) 6 12/07/2017
PP255 MND Australia (PDF - 323.7 KB) 14 12/07/2017
PP256 Disability Services Australia (DSA) (PDF - 219.9 KB) 5 12/07/2017
PP257 Australian Lawyers Alliance (PDF - 191.8 KB) 13 12/07/2017
PP258 Australian Red Cross (PDF - 481.7 KB) 9 12/07/2017
PP259 Royal Institute for Deaf and Blind Children (PDF - 859.0 KB) 7 12/07/2017
  Royal Institute for Deaf and Blind Children (Word - 591.3 KB)    
PP260 ACT Disability, Aged and Carer Advocacy Service (ADACAS) (PDF - 328.2 KB) 7 12/07/2017
PP261 cohealth ltd (PDF - 571.8 KB) 5 12/07/2017
  cohealth ltd (Word - 722.1 KB)    
PP262 Youth Disability Advocacy Service (YDAS) (PDF - 582.8 KB) 8 12/07/2017
  Youth Disability Advocacy Service (YDAS) (Word - 2.9 MB)    
PP263 Australian Blindness Forum (ABF) (PDF - 576.6 KB) 16 12/07/2017
  Australian Blindness Forum (ABF) (Word - 48.5 KB)    
PP264 Victorian Council of Social Service (VCOSS) (PDF - 204.3 KB) 8 12/07/2017
PP265 Allianz Australia Ltd (PDF - 347.3 KB) 8 12/07/2017
PP266 One Door Mental Health (PDF - 312.8 KB) 17 12/07/2017
PP267 Espyconnect * in confidence content omitted - -
PP268 Integra (PDF - 169.8 KB) 5 12/07/2017
  Integra (Word - 27.5 KB)    
PP269 Mental Health of Young People with Developmental Disabilities (PDF - 252.7 KB) 6 12/07/2017
  Mental Health of Young People with Developmental Disabilities (Word - 31.3 KB)    
PP270 Community Mental Health Australia (CMHA) (PDF - 410.2 KB) 16 12/07/2017
Attachment: Letter (PDF - 82.3 KB) 2 12/07/2017
PP271 Interchange Inner East Inc (PDF - 555.5 KB) 4 12/07/2017
  Interchange Inner East Inc (Word - 43.8 KB)    
PP272 Health Services Union (HSU), Australian Services Union (ASU) and United Voice (PDF - 297.7 KB) 2 12/07/2017
Attachment (Research report): Reasonable, necessary and valued: Pricing disability services for quality support and decent jobs (2017) (PDF - 889.9 KB) 97 12/07/2017
PP273 Australian Unity (PDF - 138.9 KB) 2 12/07/2017
PP274 Volunteering Australia (PDF - 694.5 KB) 9 12/07/2017
PP275 Launch Housing (PDF - 487.7 KB) 7 12/07/2017
PP276 EACH (PDF - 724.3 KB) 19 12/07/2017
  EACH (Word - 369.8 KB)    
PP277 AEIOU Foundation (PDF - 557.0 KB) 8 12/07/2017
PP278 Catholic Social Services Australia (PDF - 168.7 KB) 8 12/07/2017
PP279 Self Advocacy Resource Unit (SARU) (PDF - 127.8 KB) 2 12/07/2017
  Self Advocacy Resource Unit (SARU) (Word - 14.9 KB)    
PP280 Community Transport Organisation (CTO) (PDF - 510.0 KB) 1 12/07/2017
  Community Transport Organisation (CTO) (Word - 85.7 KB)    
PP281 Amaze (PDF - 408.5 KB) 13 12/07/2017
PP282 Women with Disabilities Victoria (PDF - 602.5 KB) 11 12/07/2017
PP283 Multiple Sclerosis Australia (PDF - 202.7 KB) 12 12/07/2017
PP284 VICSERV (PDF - 518.2 KB) 10 12/07/2017
PP285 Occupational Therapists Australia (OTA) (PDF - 463.7 KB) 11 12/07/2017
PP286 Mental Health Community Coalition ACT (PDF - 165.4 KB) 7 12/07/2017
PP287 Name Withheld (PDF - 63.4 KB) 2 09/07/2017
  Name Withheld (Word - 14.8 KB)    
PP288 Macarthur Disability Services (MDS) * in confidence content omitted - -
PP289 Name Withheld (PDF - 45.1 KB) 2 12/07/2017
PP290 EarlyEd (PDF - 128.7 KB) 3 12/07/2017
PP291 Sharing Places (PDF - 189.8 KB) 5 12/07/2017
  Sharing Places (Word - 126.0 KB)    
PP292 Dietitians Association of Australia (PDF - 140.3 KB) 5 12/07/2017
PP293 Summer Foundation (PDF - 229.4 KB) 10 12/07/2017
  Summer Foundation (Word - 101.8 KB)    
PP294 The Australian Orthotic Prosthetic Association (AOPA) (PDF - 66.1 KB) 5 12/07/2017
PP295 National Disability Services (NDS) (PDF - 194.7 KB) 11 12/07/2017
  National Disability Services (NDS) (Word - 114.7 KB)    
PP296 Better Caring Pty Limited (PDF - 482.2 KB) 3 12/07/2017
PP297 Queensland Association of Special Education Inc (PDF - 93.5 KB) 2 12/07/2017
  Queensland Association of Special Education Inc (Word - 33.1 KB)    
PP298 Victorian Government (PDF - 726.5 KB) 40 12/07/2017
PP299 Royal Australasian College of Physicians (RACP) (PDF - 85.9 KB) 7 12/07/2017
PP300 Capricorn Community Development Association Inc (PDF - 297.2 KB) 7 12/07/2017
  Capricorn Community Development Association Inc (Word - 53.8 KB)    
PP301 Early Childhood Intervention Australia Victoria/Tasmania Limited (ECIA VIC/TAS) (PDF - 289.6 KB) 8 12/07/2017
  Early Childhood Intervention Australia Victoria/Tasmania Limited (ECIA VIC/TAS) (Word - 143.2 KB)    
PP302 Activ (PDF - 541.1 KB) 13 12/07/2017
PP303 Speech Pathology Australia (PDF - 340.5 KB) 11 12/07/2017
PP304 SAL Consulting (PDF - 184.4 KB) 17 12/07/2017
PP305 Community & Public Sector Union, Civil Services Association of WA (PDF - 212.3 KB) 3 12/07/2017
PP306 Physical Disability Australia (PDA) (PDF - 240.1 KB) 5 12/07/2017
PP307 Richard Madden (PDF - 347.9 KB) 8 13/07/2017
  Richard Madden (Word - 898.1 KB)    
PP308 Mental Health Coalition of South Australia (PDF - 776.5 KB) 6 12/07/2017
PP309 Maurice Blackburn (PDF - 333.3 KB) 13 12/07/2017
PP310 Community and Public Sector Union (PDF - 69.0 KB) 6 13/07/2017
PP311 Queensland Advocacy Incorporated (PDF - 480.1 KB) 14 13/07/2017
PP312 ACT Government (PDF - 827.8 KB) 18 13/07/2017
PP313 Alzheimer's Australia (PDF - 275.0 KB) 8 14/07/2017
  Alzheimer's Australia (Word - 41.5 KB)    
PP314 Victoria Legal Aid (PDF - 457.2 KB) 8 14/07/2017
PP315 Kylie Burns (PDF - 688.9 KB) 5 14/07/2017
  Kylie Burns (Word - 220.0 KB)    
Attachment (Annexure 1): AAT and Federal Court Appeal Cases and Meaning of ‘Reasonable and Necessary Support’ (s 34) (PDF - 178.6 KB) 4 14/07/2017
  Attachment (Annexure 1): AAT and Federal Court Appeal Cases and Meaning of ‘Reasonable and Necessary Support’ (s 34) (Word - 23.1 KB)    
PP316 Health Services Union (HSU) (PDF - 849.3 KB) 10 14/07/2017
PP317 Mental Health Carers ARAFMI Illawarra (PDF - 210.2 KB) 4 14/07/2017
Attachment 1: ARAFMI Illawarra brochure (PDF - 295.1 KB) 2 14/07/2017
Attachment 2: ARAFMI Illawarra current programmes and support services (PDF - 664.0 KB) 9 14/07/2017
PP318 Department of Social Services (DSS) (PDF - 262.9 KB) 25 14/07/2017
  Department of Social Services (DSS) (Word - 128.1 KB)    
PP319 National Mental Health Commission (NMHC) (PDF - 308.3 KB) 17 14/07/2017
  National Mental Health Commission (NMHC) (Word - 183.1 KB)    
PP320 Western Australia Local Government Association (WALGA) (PDF - 189.8 KB) 8 12/07/2017
PP321 Mental Health Australia (PDF - 391.8 KB) 39 13/07/2017
PP322 Lifestart Co-operative Limited (PDF - 174.5 KB) 4 14/07/2017
  Lifestart Co-operative Limited (Word - 42.9 KB)    
PP323 NSW Nurses and Midwives' Association (PDF - 149.0 KB) 3 17/07/2017
PP324 Plan Management Partners (PDF - 182.7 KB) 8 17/07/2017
PP325 Australian Federation of Disability Organisations (PDF - 464.3 KB) 26 17/07/2017
  Australian Federation of Disability Organisations (Word - 599.7 KB)    
PP326 Young People In Nursing Homes National Alliance (PDF - 169.2 KB) 17 14/07/2017
PP327 National Disability Insurance Agency (NDIA) (PDF - 928.3 KB) 67 17/07/2017
  National Disability Insurance Agency (NDIA) (Word - 302.6 KB)    
PP328 Noah's Ark (PDF - 738.6 KB) 14 19/07/2017
PP329 Business Council of Co-operatives and Mutuals (BCCM) (PDF - 271.9 KB) 8 19/07/2017
PP330 Autism Advisory and Support Service (AASS) (PDF - 612.2 KB) 12 19/07/2017
  Autism Advisory and Support Service (AASS) (Word - 33.8 KB)    
PP331 Francis Ross * in confidence content omitted - -
PP332 Victorian Advocacy League for Individuals with Disability (VALID) (PDF - 234.8 KB) 11 19/07/2017
PP333 Bruce Bonyhady (PDF - 272.9 KB) 25 20/07/2017
  Bruce Bonyhady (Word - 54.1 KB)    
PP334 The Benevolent Society (PDF - 790.6 KB) 7 17/07/2017
PP335 Queenslanders with Disability Network (PDF - 621.1 KB) 14 19/07/2017
PP336 Aboriginal Medical Services Alliance NT (AMSANT) (PDF - 395.9 KB) 12 12/07/2017
Attachment: APO NT Partnership Principles for working with Aboriginal organisations and communities in the Northern Territory (PDF - 464.4 KB) 2 20/07/2017
PP337 Victorian Healthcare Association (PDF - 432.6 KB) 10 21/07/2017
PP338 Mental Illness Fellowship of Australia (PDF - 1.1 MB) 26 20/07/2017
PP339 Anglicare Australia (PDF - 594.8 KB) 11 23/07/2017
PP340 Anglicare NT (PDF - 220.0 KB) 5 23/07/2017
Attachment: Anglicare NT’s response to the Productivity Commission’s Preliminary Finding Report, ‘Introducing Competition and Informed User Choice into Human Services. Identifying Sectors for Reform’ (PDF - 293.0 KB) 8 23/07/2017
PP341 Mental Health Carers Australia (PDF - 121.2 KB) 10 21/07/2017
PP342 Australians for Disability Justice (ADJ) (PDF - 591.7 KB) 48 19/07/2017
  Australians for Disability Justice (ADJ) (Word - 132.7 KB)    
Attachment A: The provision of services under the NDIS for people with disabilities who are in contact with the criminal justice system (PDF - 306.1 KB) 13 19/07/2017
  Attachment A: The provision of services under the NDIS for people with disabilities who are in contact with the criminal justice system (Word - 137.7 KB)    
Attachment B: Advice to the Chair of the NDIS Joint Standing Committee regarding a NDIA Criminal Justice Unit (PDF - 137.2 KB) 2 19/07/2017
  Attachment B: Advice to the Chair of the NDIS Joint Standing Committee regarding a NDIA Criminal Justice Unit (Word - 33.2 KB)    
PP343 Municipal Association of Victoria (PDF - 158.6 KB) 3 19/07/2017
PP344 National Disability and Carer Alliance (PDF - 234.2 KB) 15 27/07/2017
  National Disability and Carer Alliance (Word - 372.9 KB)    
PP345 Queensland Government (PDF - 878.8 KB) 27 28/07/2017
PP346 Family Advocacy (PDF - 1.3 MB) 29 21/07/2017
PP347 Neami National (PDF - 686.7 KB) 10 31/07/2017
PP348 Aftercare (PDF - 307.3 KB) 12 28/07/2017
  Aftercare (Word - 4.1 MB)    
PP349 Australian Institute of Health and Welfare (AIHW) (PDF - 460.5 KB) 7 31/07/2017
PP350 JFA Purple Orange (PDF - 685.1 KB) 31 31/07/2017
PP351 Blind Citizens Australia (BCA) (PDF - 200.7 KB) 15 17/07/2017
  Blind Citizens Australia (BCA) (Word - 76.1 KB)    
PP352 Elizabeth Wall (PDF - 90.0 KB) 3 31/07/2017
  Elizabeth Wall (Word - 32.2 KB)    
PP353 Bruce Becker * in confidence content omitted - -
PP354 South Australian Government (PDF - 209.0 KB) 15 01/08/2017
PP355 First Peoples Disability Network Australia (PDF - 554.9 KB) 23 14/07/2017
PP356 Positive Life NSW (PDF - 378.8 KB) 12 14/07/2017
  Positive Life NSW (Word - 387.3 KB)    
PP357 Inclusion Australia (NCID) (PDF - 148.6 KB) 26 20/07/2017
PP358 Children and Young People with Disability Australia (CYDA) (PDF - 245.4 KB) 16 04/08/2017
  Children and Young People with Disability Australia (CYDA) (Word - 47.0 KB)    
PP359 Northern Territory Government (PDF - 132.6 KB) 18 08/08/2017
PP360 Department of Health (PDF - 246.6 KB) 4 15/08/2017
PP361 Royal Australian College of General Practitioners (RACGP) (PDF - 52.2 KB) 2 23/08/2017
PP362 David Parkin (PDF - 263.4 KB) 23 21/08/2017
  David Parkin (Word - 54.8 KB)    
PP363 Francis Ross (PDF - 126.8 KB) 2 24/08/2017
  Francis Ross (Word - 30.1 KB)    
PP364 Deb Diggins (PDF - 76.9 KB) 3 18/08/2017
  Deb Diggins (Word - 30.0 KB)    
PP365 Name Withheld (PDF - 94.2 KB) 2 28/08/2017
  Name Withheld (Word - 27.8 KB)    
PP366 Arts Access Australia (AAA) (PDF - 273.8 KB) 11 11/09/2017
Attachment A: AAA National Disability Insurance Scheme Working Group Terms of Reference (PDF - 24.8 KB) 1 11/09/2017
Attachment B: AAA National Disability Insurance Scheme Working Group September 2017 Discussion Paper (PDF - 629.6 KB) 8 11/09/2017
PP367 Victoria Legal Aid (PDF - 369.8 KB) 4 12/08/2017
PP368 Heather Batt (PDF - 215.5 KB) 6 14/09/2017
PP369 National Disability Insurance Agency (NDIA) * in confidence content omitted - -
PP370 National Disability Insurance Agency (NDIA) * in confidence content omitted - -
PP371 Disability Advocacy Network Australia (DANA) (PDF - 162.4 KB) 2 25/09/2017
Attachment 1: A Cost benefit analysis of Australian independent disability advocacy agencies (PDF - 1.5 MB) 113 25/09/2017
Attachment 2: Funding independent advocacy is a good deal for people with a disability and for government (PDF - 316.0 KB) 8 25/09/2017
Attachment 3: NDIS Survey 2016-17 results (PDF - 1.1 MB) 29 25/09/2017
Attachment 4: NDIS survey 2015 results (PDF - 850.8 KB) 10 25/09/2017
PP372 Carmel Curlewis (PDF - 591.2 KB) 2 29/09/2017
Attachment: Disability Nutrition Support Network Initiatives and Progress (PDF - 362.0 KB) 1 29/09/2017

The following tables include all brief public comments that were made via the organisation Every Australian Counts, from 20 January 2017 to 7 June 2017.

No. Name Comment

1

Christie Centre Inc

The Christie Centre Inc founded over 60 years ago by parents in the rural region of Mildura established a solution focused, place based service to meet the needs of their community. Christie Centre Inc continues to do this offering and providing person directed opportunities to meet the individual needs of people living with disability. Our experience and evidence shows that when people exercise choice and control over their lives the need to utilise tertiary service is reduced. Our decision making is informed by the feedback of people, their families, the community and other stakeholders that when people are encouraged to live their life as social, economic and participating citizens the whole community benefits. The NDIS is a vital and long awaited shift removing the inequity of rationed funding and ensuring that all eligible people are provided with the range of supports to live a good life, a productive life and one that is on par with the rest of Australian society we ask for no more and no less than what is equitable and fair. The challenges with the roll out and the uncertainty the political environment has been creating distract us from embracing the most fundamental shift in societal thinking about capability and citizenship and has the potential to derail the benefits for so many. People with a disability are not burdens on the tax payer they are citizens and with support to meet their needs contribute broadly to the fabric of Australian society.

2

Anne Hansen

As my role as a disability advocate, I have seen the life changes in people with disability who now have NDIS funding. They are now accessing community, having a good life and have hope for their futures. The burdens are off the family, some aged carers, and there is job creation. Broken wheelchairs are now being replaced and people who never had wheelchairs, now have and can access the community. I now see happy people.

3

Lorraine Rodrigues

The NDIS to me is knowing that my son will have a future of his own to look forward to if I am unable to care for him for whatever reason. It is his opportunity to live his life to the fullest without having to depend on me to take him out, access community services and events, be in the company of his own age peers and be his own voice. I would like to see that such an endeavour is not misused or grabbed at from a financial perspective but is held accountable to the highest standards of delivery so that our children truly benefit from it.

4

Ann Verran

I have twin Grandsons born premi with Special Needs. One Heart issues (two open heart surgeries) and the other Cerebral Palsy. My Daughter is a single Mum and relies on family support to a great extent. This we give willingly, but her extended family is aging and her son with CP need the be in a situation where he has outside support if anything happens to her. He has had extensive surgery last year and the extensive costs of rehabilitation are funded by my Daughter with funds raised in her community. My Grandson can live a fulfilled life if he is given assistance. His CP is physical and he is determined to do everything his Twin does. This includes playing soccer in his walker, swimming with the local Orca Swim Club and "running" his school Cross Country in his wheelchair. He participates in everything. The NDIS will allow him to plan his future and gain his independence and continue to be a valued member contributing to his community. He has the same rights as all other Australians and his dis-ABILITY should not hold him back. He is in mainstream at school and the best thing about his inclusion, is the attitude of the other children in the school. He have been an integral part of the school since Kinder and his classmates learned very early on that he does not do sympathy and is fiercely independent and competitive. His and other children with special needs inclusion in his school has opened the eyes of all the other children to those with a dis-ABILITY. They treat him as a friend, a competitor and the best thing, just another kid. They will help him if needed, but it is just a matter of course. It has opened the eyes of others to someone with Special Needs. He does not see himself with a dis-ABILITY. In his case it is definitely a ABILITY. The NDIS, properly funded and working would make a huge difference to his quality of life.

5

Wendy McAra

My one and only grandson, Leo, turns 12 this month. He is non-verbal, severely autistic, and can do very little for himself.

His parents, devoted as they are, are exhausted, stressed and struggle to pay for carers to allow them to lead a vaguely normal life.

You would understand that the financial as well as emotional strain is huge. This is not a responsibility or future any of us would choose for ourselves. Those of us who have escaped such a fate should surely open their hearts and contribute some support to turn what would be a living hell into a possible, if far from normal, life for his parents, and family, like me, his grandmother.

I emigrated from South Africa hen my children were under five. I so admired the generosity of Medicare and Social Security and I have been, and remain, proud to be Australian. The NDIS is a fine and socially responsible, caring initiative and is another move to uphold the decency of The Lucky Country.

Thank you for caring, and doing the right thing.

Kindest regards,

Wendy McAra

6

Claire Galea

I am very grateful to the NDIS for the increase in funding I have received for my Asperger's son - I cried. However, my euphoria soon turned to disappointment when I realised that I cannot spend it on anything meaningful or long-lasting in terms of therapies that can actually make a significant difference to his life. I cried again. If I want to pay a carer to take him to the zoo every day for a year, then that's absolutely fine - the funding's there for that... if he wanted to do it... which he doesn't. But clubs and groups that he actually wants to join? No. Therapies that can actually prevent him from getting into trouble in class at school? No. Therapies that can help him understand conversations and improve his social skills? No. Learning support that can give him the skills to cope at school. No. Asperger's IS a learning difficulty - it's not a consequence of - that's what it is. Short term memory issues, sequencing issues, organisational issues, processing issues, auditory issues, sensory issues, comprehension issues, inference issues. THAT IS ASPERGER'S. So how on earth can you not provide learning support for it - this affects their every day life. Asperger's kids are usually of above average intelligence but below average academically. Why is that? Many of them end up unemployed. Why is that? If you don't want them claiming unemployment benefit or disability allowance for the rest of their lives, then please, please, please let us put the funding now towards therapies and programs that can help them at school to reach their intellectual ability so they can go out and get an education/job and make a meaningful contribution to society. Even Einstein was expelled from school.

7

Alexandra Pankhurst

Hi!! I am a 64 year old Mother, on my own, I have a son with Down's Syndrome 20 years old, my last child. I do not receive any informal or family supports so I desperately need the NDIS due to my age so my son can continue to gain independence, learn more social and living skills for his future for when I am not around. Due to my age, I get very tired so the NDIS is desperately needed to set up transport so my son can access all the organizations and support that I have been very proactive in for him to participate without having to rely on me to do all his running around. More Community access is needed for him in a social group. My son is placid and is well adapted to accessing the wider community always with the need of a support worker so he will walk straight into the NDIS arrangement. I have been under the YLYC and been managing my own supports for my son with great success so this has given me the experience to cope with the NDIS. Can't wait. Thank you.

8

Erin McCrea

My ten year old son has a diagnosis of Autism and Hearing Impairment. I have sought support from Disability Services Queensland, the Local Area Coordinator for Disability Services in my local area and Deaf Services. I have been advised that there is currently no support available in my area, though my son can have 8 AUSLAN lessons for a reduced rate of just under $800. The advise I have received is that I need to self fund any therapies or services until the NDIS comes to our area (mid-2018).

At the moment, it appears that those of us who are not yet in areas where the NDIS has rolled out, are at a significant disadvantage. This is further impacted by Centrelink rejecting an application for carer allowance, which I am in the process of appealing.

9

Mike Lawson

I care for my disabled wife 24 hrs a day 7 days a week. I know for a fact there are many other carers in a similar position - ie - working for an incredible amount of time doing the caring/nursing of their loved ones and getting a crap pittance (carers pension) for it. That is a joke, given the hours an average carer does in caring. I do get some respite breaks, but compared to the break 'normal' workers get, we carers mostly do not get that. We (carers collectively) save the government billions of dollars a year by caring/nursing our loved ones at home. As far as I concerned, we work for a pittance for the amount of time and effort we put into looking after our disabled loved ones. If, we as carers, dumped our loved ones on the steps of Parliament House and left them, the politicians would collectively s---- themselves. Having a better system whereby the carer and the disabled person is better looked after, is a must.

10

Michael Hessenthaler

I am the 66 years old father and carer for my daughter that is high level quadriplegic and we are to finally receive help from NDIS soon here on the mid-north coast of NSW. I have to say that our initial elation about what NDIS will mean for our lives is more and more replaced by anxiety and worry because we read and see many stories of short comings, restrictions and of course endless political games they play about funding. There will not be enough to go round, there will be more bureaucracy to overcome, there will not be the opportunities for my daughter that she never had, but hopes to achieve when she has more help. I worry I am running out of time and the NDIS will not deliver what originally was intended by some people inspired by humanity and common sense.

Please don't allow political pressure to diminish the funding. Have a realistic look at the relief it's brought many people already and the worry and limitations that some, like us, are looking forward to. Life with severe disability is tough and funding sufficient support and equipment is the fair and decent thing to do. And providing it without bureaucratic and political obstacles.

Thank you.

11

Brigitte Krstanoski

I am a mum of a very disable young man 33 yr old who needs all his needs met by me feeding changing showering all of his needs. The NDIS has made a huge difference in his life so far but i put the hard work into it with help from a very dear friend it took months to prepare for his turn and the outcome was great he now can enjoy the life that he deserves like normal young men of the same age but he needs a Carer to achieve his dream he goes to a day program 5 days a week out on Sat and Sundays which he loves he doesn’t like the idea being home with the oldies , he will be getting the wheelchair that he needs maybe a forearm walking frame he is very happy now, i get fair bit of help from Australian Unity 5 days a week morning and night as my health is going rapidly and i cant care for him like i was when i was younger as the load is huge i do worry about his review when it comes up what will happen not far from my brain but Planner and Support Coordinator have told me don’t worry but I’m a mum and hard not to. I’m sadden for a lot of Disable people and their families aren’t getting the help they need like yesterday and aren’t getting it or there plains don’t fund enough and i see the stress there parents go through i thought the NDIS was to make life better for all? Please don’t cut funding from other places to fund the NDIS that’s not fare and the so called normal families will get their backs up on our Disable people that’s wrong. Our loved ones deserve a life freedom like normal people do or do they? Thank you.

12

Dale Kennedy

My son Nicholas is 32, profoundly physically disabled but high functioning intellectually. He is treated like a child in that day program hours are school hours and his group home don't have the funds or the motivation to do anything with him other than take him out once a month for a 1:1. He constantly watches DVDs and listens to music when all he desperately wants to do is go out into the community. NDIS has changed his life this year. We have been able to negotiate his costs with his day program provider and have been able to spend the residual funding on community access outside of day program school hours. He has been to two disco's on a Friday night and is planning to go to every disco every month between now and Christmas and he is going out for a few hours every Saturday with carers he has chosen to destinations he has chosen. Whilst this is still not enough for a young man of 32 it is way better than the 'ground hog' existence he had up until receiving his NDIS package. It has not been an easy journey learning about NDIS and what we can and can't do but just to see the smile on my son's face while out with one of his carers that he has chosen at a time that is not dictated to him and a venue that he has had input into make everything we do on behalf of him so worthwhile.

13

Nancy Donaldson

Ndis is important to my daughters future and any child who has a parent that can’t live for ever.

We need to know our children will be safe and housed for the rest of their lives .

To Malcolm Turnbull our children are an inconvenience to the taxpayers as he gets his perks and cashes in on his investments he gets .

We don’t choose for our kids to be born with a disability and we don't choose to ask for help but we need the help .

As carers we choose to stay with our children as long as life will let us and we choose to give them as much dignity and teaching as we can .

Looking after our children without help does take its toll and most parents especially ones only on a carers pension do it hard.

We need to choose food and rent over luxury always ,other than two days away in a row we have had no holiday and the rare bit of money needs to go towards their disability .

Our children can grow to be wonderful adults if given the chance and we need the help and peace of mind knowing they will be supported.

14

Kristine FitzGerald

This is my family, husband, blind, on blind pension and unable to work, son 30 yrs old Autistic, Intellectually impaired and epileptic..on DSP, daughter, 34, Aspergers, severe anxiety, depression cannot work. She has zero income because when she was on Newstart allowance she was expected to apply for 10 jobs a fortnight, she is in the last year of her PHD (PHD's are not study according to Centrelink so no study allowance for her)and has not time nor ability to apply for so many jobs, there are not 10 jobs to apply for in our rural region. I also have my elderly parents in a granny flat attached to our place, my father is 92 and mother 88 and she has Alzheimers disease. SO, this is my life, caring for 5 people, financially supporting my daughter and physically supporting everyone ( I also had cancer 10 years ago) No time to rest for me but I do work 3 days a week as a teacher aide for students with learning difficulties. We live from day to day with no savings at all and a mortgage, such a huge struggle. The way my daughter was treated at Centrelink was absolutely disgusting with statements like "you will just have to get a job DARLING" with no respect for her illness. No holiday for 8 years and no respite for my son. No NDIS in my region yet and the mental burden of not being able to make my son more independent and being able to live his life like other adults. No supported houses for people like Luke, only if you are rich and can afford to pay for support workers and accommodation. It is very very tough both physically and mentally.

15

Brenda Gillett

My adult son James (39 years old) who has an intellectual disability, lived at home until almost two years ago, when we then decided it was time for him to try to live as independently as possible without our total support - after all we are ageing, with hopefully 15-20 years left to get our 'boy' safe and settled: with a very small flexible respite fund, we received minimal support - support through a provider who was unreliable and who almost caused us to abandon the whole idea and experience. Our NDIS LAC heard our story, and we now receive substantial enough funding to help us in our quest for James' independent life without his parents, and with other's taking care of him. He requires 24/7 support, so we have a way to go yet. Support from service providers and us, his parents, is shared about 50:50 - but we are on our way at last. James just loves his own 'unit' and his new (and much loved) support person who is enabling James to become more independent each day; and is helping him to become more inclusive in his community. No more cajoling him to get on a bus with people he didn't choose to be with - and go on trips he couldn't really cope with, just so his dad and myself could have an overnight break. James also has used funding specifically set aside for a speech pathology assessment and is looking forward to catching up with the 21st century and the rest of his generation by buying an iPad with which to look at his photos and use a communication app to help him express his needs and wants. Thank you for the opportunity to share our story with you. It hasn't been an easy transition - especially for a couple of oldies like James' dad and myself. But James has taken to it all like a duck to water: which is a tremendous relief and joy.

16

Heather Batt

NDIS means freedom form the powers of money driven organisations who do not respect the personal needs of PWD nor the natural authority of the family. NDIS means the opportunity to have a good, ordinary life engaging in everyday activities like exercise, visiting family, enjoying things PWD specifically likes and engaging in income producing activities the PWD finds fulfilling and capable of doing. NDIS means family can be the most influential people in PWD lives again, encouraging and supporting PWD to embrace as full and rich a life as anyone in the community with support. NDIS means seeing the smiles on PWD faces again.

NDIS means a lot to me because l can get my own support worker and not through organisation

17

Merle Searle

Hi, My husband and i are carers of a young man with Spina Bifida and behaviour problems. In the past we have always had a struggle to access respite as he needs one on one support staff and his D.S.Q. funding did not cover the funds required for overnight stays or at best very limited. Thanks to N.D.I.S. he now has a funding package that allows much more support. This is very welcome to us as my husband has some health problems at present and we will need to be able to use respite during my husband’s treatment. We are very grateful that the worry associated with obtaining respite is now in the past. The N.D.I.S. has made such a huge difference to us and our young man on a day to day basis as we are in the older age bracket i.e. over 70 and now because of the extra funding he has support workers that can take him into the community . Please keep up the N.D.I.S. it is so appreciated in our household. We have been Troys carers for 31 plus years. Regards, Merle

18

Paul Clarke

I have A.B.I from motor vehicle accident. It has impacted my life greatly, I have short memory as I need help with that. I also cannot plan like I once did. I have anosima from head injury. I acquired a few fractured vertebrae and live with arthritis and pain. I can suffer headaches and migraines on daily basis.

I attend Headway Illawarra for fellowship and support. I also use Illawarra Brain Injury Service to talk it through with a social worker which is a good thing because it helps me stay on track.

19

Sally Shackcloth

My adult daughter's life has improved in many ways since she was a member of the trial group in Tasmania. An occupational therapist found that her bed was unsafe both for her and for the support workers dressing her. The physio review recommended a hip x-ray because of increasing mobility problems. The result is she is now having preventative treatment so her condition doesn't deteriorate. She now has regular time set aside to stand alone in her new standing frame. Standing is very important for many reasons especially for people who spend most of their time sitting in a chair or a wheelchair. Very importantly, she is now participating in an ongoing speech pathology program with an expert speech pathologist as she needs a communication system tailored to her needs. Up to now she has no reliable way to communicate. My husband and I are thrilled with the NDIS.

20

Denise Maindonald

My 19 old son with DS was unable to access post-school funding as he did a School Based Traineeship. Bryden needed full support whilst working as he is Hearing Impaired and there is a marked lack of understanding of talking to deaf people in the workforce. Bryden is now deemed as being able to work as he passed the course but jobs are not available. At present he is doing courses to learn how to be independent. I am a single mum and work full time. These course require Bryden to travel by bus, trains and trams to get to the courses which then teach him how to travel and be independent. We have had our successes but have also had our failures which have resulted in him being lost somewhere on the Gold Coast with a flat phone (he had to sit and wait at the bus stop for 1and 1/2 hours till the people met so he listened to music). I am learning on the spot the things that my son does not know such as 'On bus' is not the same as 'On the bus station'. We do not have NDIS here on the Gold Coast yet and I do hope that the funding is better organised than at present. I am trying hard to make my son independent but there is a gap present between for those young adults that are not high functioning and not more impaired. There are few appropriate courses for Bryden and those that are in place put Bryden in situations that possibly dangerous and are extremely stressful for me. This results in Bryden being left at home for part of the week while I work resulting in phone calls that he has decided to catch a bus to the shops but it went the wrong way and me trying to locate him on 'Find my phone' and then talking him through the situation. I raised my son to be confident and with the aim to him being as independent as able. He knows he is Down Syndrome and Hearing Impaired and is a proud advocate. We just need help to get him there and once there he will cost the government markedly less than a child that needs full time care.

21

Julanne Sweeney

When my granddaughter Isadora Sweeney was born with Down syndrome in 2002 , I left my beautiful home in Far North Queensland rainforest and my Innisfail High School teaching job and came to Adelaide to support my daughter and her husband who are wonderful parents with extremely busy lives in the theatre and Festival world.

Because we used every Early Intervention strategy possible and had access to supportive Kindy and Primary School and exceptional role modelling from 4 years- older sister Lotte ( and another sister Beatrix 5 years later),Isi developed into a delightful person,confident for the all girls High School which suits her needs but requires driving every day.

Her mother has survived aggressive breast cancer 2 years ago and is in a demanding childrens's creativity job. I'm 80 now (living independently and very fit and helping almost every day). Isadora's loving father often has late hours and some o/s travel due to his work.

So NDIS comes as a boon to help with school pick-ups and sharing outings with other Down syndrome friends,as well as training Isi to use public transport and support her social awareness and love of swimming.

The strain on our busy family would be almost unbearable without NDIS.It has meant we could allow Isi to participate in the Adelaide Festival 2017 Restless Dance INTIMATE SPACE ( sold out) by attending so many rehearsals and performances. With NDIS help she is learning skills to equip her for independent living and employment in the future .

22

Lisa Jackson

I am 53 yrs old in 2011 I became physically disabled after severe Miller Fisher Variant Guillain Barre syndrome .I spent 2yrs in hospital at Robina QLD before having NO OPTION other than discharge to a NURSING HOME where I still reside today. Life goes on I have made great strides in my everyday independence. Living in a nursing home surrounded by elderly people with dementia Alzheimer’s and watching people slowly deteriorate and died around me is a mentally cruel way to live. Last August after 3 operations in 2016 I finally got rid of my tracheostomy-I am ready to move forward now to doing some hydrotherapy-Iam using the last of my Superannuation to fund this-As both myself and the Physiotherapist believe after 4 yrs with no rehab I can still regain my strength to stand up and eventually walk-I am currently using an electric wheelchair. My fingers are clawed due to nerve damage despite this I have found aids and devised ways to write legibly, independently feed myself, prepare sandwiches, open and heat microwave meals, clean my teeth, operate my computer and mobile phone and travel independently using wheelchair taxis the train and the g link tram. I aspire to making my present dreams a reality I want to cook my own meals do my own washing live my own life as independently as possible. My other goal this year is to work part time again using a computer .I am a people orientated person who enjoys helping others. I have done everything within my power to move forward onwards and upwards in my life-a nursing home setting has restricted my ability to move forward greatly-I ring disability services every 6 months but I remain waiting-I need a helping hand up to rejoin contribute and become a valuable member of my community again. THIS IS WHAT THE NDIS CAN DO FOR ME PERSONALLY AND THOUSANDS OF OTHER DESERVING AUSTRALIANS

23

Tegan Pinkard

I believe the NDIS can provide freedom and choice for people living with a disability. I have had MS for 10years, my disability is currently mild however has the potential to change someday in the near future. I am the mother to 2 children and I am doing my best to remain fit and healthy in order to care for them as best as possible. At times I fear the unknown of this disease and what impact it will have on both my life and my families. I hope that the NDIS will provide me with options and be able to self-manage my healthcare.

24

A.S

Our daughter suffered 2 surgeries to remove a brain tumour last November. Our lives have been turned upside down. Thank the Lord she is making a wonderful recovery. However, the amount of paperwork, consultation with dozens of medicos, attempting to negotiate Government agency requirements, has been distressing and exhausting. We can only hope that NDIS streamlines and facilitates the processes required, when faced with such an unexpected health situation.

25

Val Date

My 54 yearold daughter Michelle is a victim of the 1966 road toll; her head and leg were hit by a car when she was crossing a suburban street, 3 weeks before her 4th birthday. This formerly intelligent little girl has been intellectually and physically disabled every since. At 81 I have fears for her future care and continued access to family members and wish to ensure that all her needs will be adequately provided for during the remainder of her life. On paper NDIS offers this, nevertheless I wish to ensure all her entitled comforts and care are securely provided for during the remainder of her (and my) lifetime. How can I be assured this will happen please?

26

Linda Sayers

Although the NDIS isn't yet rolled out in my area, it is coming soon. After being registered with DSS for almost 4yrs & waiting on their register of need as long, I am hoping that finally my son & I will have choices for his support & needs. We may actually receive some support. For my family hopefully this will be a positive change.

27

Laura Bloom

My wonderful son was diagnosed with severe autism at 10 months old. He is now about to be twelve years old. In that time we have received almost no additional support outside of school, and while we are still a loving and committed family, without the prospect of the NDIS bringing financial, physical and emotional relief I don't know how we would still be hanging on. We cannot socialise without a carer which we cannot afford. Therapy, and after school care is all paid by us, which means that although we earn a good wage and pay significant tax, we are crumbling financially, physically and emotionally. We are isolated and exhausted and the worst of it is our son has so much to offer! Although he needs support to do so he loves to engage and participate. It's just so hard coming up against our own physical limits to support him to do that. With support he will adore scouts, footie and family barbecues and other social events. Without, we are so exhausted from the non stop two man marathon my husband and I are engaged in that we are doing well just to all be here, still solvent (barely) and in one piece. Without wishing to exaggerate we have been a family in crisis for a long time, and yet everyone would tell you what a wonderful family we are. Disability services have been useless to indifferent. With the ndis we hope to return to the flourishing productive family we were and know we can be once again, if our son can participate and grow the way he's capable of and meant to. Thank you, Laura Bloom

28

Nathan Dore

I have been doing yoga help more my body better having cerebral palsy it makes my body harder to move if I not move it on a day move why the Ndis see it as a high need I do not know but health and fitness are a nervous thing to me

29

John Dean

This is the real story of severe Autism written from the heart of a mother. This link says it all and why NDIS is critical.

http://www.autismawareness.com.au/news-events/the-autism-post/yours-severely/

30

Peter Macpherson

At the age of 52 I was struck down with a Neurological disability that is progressively becoming more disabling. I now need to use a walking stick at all times and a scooter for any distance of more than 50 meters. I worked for more than 30 years and raised two children who are now in the workforce. As my disability will continue to worsen as I get older and I do not have have the finances to ensure that I at least retain my dignity, my quality of life is dependent on the NDIS happening.

31

Lorraine Tydeman

My son is the participant, I am ageing, in the over 60 group and with NDIS coming, my sons provider uses vans and picks up participants and takes them to the activities they attend free of charge. They have informed us that this service is going to stop unless they can come up with a viable alternative. I and a few others who are older that me, some in their eighties are going to have to transport our children to their activities as I live in rural NSW and his service provider is 20 ks away. some people live 40 to 60 ks away and some taxis refuse to drive that far in the evenings, because of wildlife on the road, esp kangaroos as if they hit one they lose their means of income. The mid north coast is a very popular area and people moved here when their child with a disability to have a good life and now this is whats happening

32

Gillian Devine

My son is Brain injured from a car accident in 1988. Since that time my husband and i looked after my son but 5yrs ago my husband passed so now its only me and I am 70 this year. The ndis will help a lot of disabled people and put families mind at ease unless you have been the same position you could never understand the worry and stress people go through.

34

Mark Purcell

My name is Mark Purcell. I am the father of Elise Purcell who has severe autism, moderate to severe intellectual disability and epilepsy. I am 62 and Elise is 28. We have lived together alone now for 12 years. I have never wanted her to live in a group home. The stress caused by her behaviours while growing up contributed to the breakdown of my marriage with her mother and to psychological problems her younger sister has. I was able to work part time up to a year ago but then due to needing to be "on call" constantly I left work late last year.

We live in the Shoalhaven area so not in the NDIS as yet.

However the NDIS has given me the hope I never had before that Elise can live as independently as possible in her own home should I cease to be able to care for her. From 2014 -2017 Elise moved out of day programmes to self-managed community participation funded through the NSW Disability Department. At the start of 2017 this was changed to the Living Life My Way programmed. Initially the NGO we were with essentially evicted Elise from day programmes due to "behaviours". They did us both the best favour ever as Elise has flourished in the self-managed model. Over the years we have increased our genuine self-management of Elise's day to day life [in resistance to disability NGOs who seem to find sharing management with parents difficult] and she has continued to flourish and her "behaviours" continued to diminish. This has increased my optimism about life under the NDIS.

Though I think it is a total mistake to dismantle totally the NSW Disability Department, the self-managed and living life my way seem to be a glimpse into how positive life for Elise can be under the NDIS.

I remember reading that the role of a career is made "a burden" in the absence of a sense of hope ... that the future is one of increasing bleakness. The NDIS has given me more hope than I have ever had in terms of Elise's future.

35

Penelope McNally

I am a widow with secondary progressive MS. I have no children, and what remains of my family live in another state. The NDIS has taken a huge weight of my shoulders about my future care.

36

Robert Altamore

The NDIS has changed my life because it has given me the ability to set my own goals, exercise my choices and given me control of my money to spend on the adaptive technology and the training I need to change my life and participate in the general community. I can now get my adaptive equipment repaired and maintained. access braille with my own braille embosser and access digital information because I am being trained to use a mobile phone. This makes me independent and able to access information which sighted people access and has enhanced my life.

37

Del Childs

The NDIS has not yet rolled out in my area but from what I am hearing there are many positive stories of people who are getting funding approved for a range of needs that they haven't been able to access previously.

Having said that, I am sorry to say that for me personally the NDIS will mean nothing. Why? Because I am over 65 and at best only the Continuity of Support program will apply to me.

It seems such a discriminatory decision to make an age related cut off line. At this point in time neither the CoS nor the Aged Care system will provide anywhere near the same amount of support that the NDIS offers.

Just because we are over 65 doesn't mean that our disability disappears and our needs become age related. I sincerely hope that Every Australian Counts will do what it can to change this situation, so that in fact every Australian DOES really count!!

38

Peter Day

NDIS is unaffordable for our daughter, Janine, who is 41 years old but functions as a 10 week old baby at which age she suffered her first catastrophic seizure. From 2006 Janine attended day care at Kankama in Mornington. For 8 years her annual fee including transport in facility buses never exceeded $800.Kankama merged with Connecting Skills Australia in 2014 Taxi replaced buses. Fees immediately were monthly $ 270.In 2016 CSA introduced fees for the individual activities offered at day care These initially were $30 per week but protest bought them down to $20 per week. When further challenged CSA claimed justification because of a $10000 loss on activities ,concern that NDIS was slow to pay providers for services therefore there was a need to build up considerable cash reserves to stave off cash flow problems and bankruptcy as had occurred in similar circumstances in the U.K.. I refuted these claims: $20 per week for 50 clients was a lot more than $10000, Every Australian Counts refuted the slow payment claims and the UK failures were due to austerity measures arising from the GFC CSA are unmoved an recently announced transport fee increase due to $170,000 loss providing client transport. The claim is that the NDIS does not provide transport assistance and therefore user pays. Consequently Janine's monthly transport fee has jumped from $170 to $359.33 and this represents only 50 per cent of the increase which will be charged from July. Presumably her transport fee will then be approximately $540 per month plus $6 per day attendance fee plus daily activity fees. In total about $8500 per annum. Unaffordable.

39

Susanna Goodrich

My son Toby is sixteen. He has Down Syndrome. He's had a rough few years with an autoimmune condition.

Until the NDIS funding, Toby was isolated, withdrawn and I wondered if he was depressed. He was a young man needing lots of contact with his peers and the wider world, yet he was confined to activities and socialising that his mum and dad could fit into their busy lives of full-time work and caring for 4 children. Toby’s social behaviours were becoming more unpredictable and his self-esteem and mood seemed to be plummeting. He had few experiences of his independence as a 16 year old young man and he was not learning essential living skills like travel on public transport, how to socialise with peers with and without intellectual disabilities and how to be an employee, like many of his peers.

The NDIS has provided funding that has changed Toby’s life. His week has opened up from a routine of school, family life and the occasional social event, to a week that looks much like his other teenage brothers: he plays sport, goes out with peers, works in a part time job and will soon be learning how to catch the bus to the local shopping and entertainment hub. He walks taller, smiles more and behaves more like a young man ought to behave. He just needed the opportunities and support that the NDIS has provided him with. His life has become more healthy, independent, and enriched. It reflects back the amazing success and productivity of this ground breaking social policy. Thank you so much.

40

Erin O'Donnell

To the Productivity Commission,

I remember when the NDIS was announced as government policy, and I felt an overwhelming sense of relief. People with disabilities (and those who care for them) already face massive hurdles in living productive, happy lives, and the NDIS is a much-needed funding and support program that makes it just that little bit easier.

I am living with a chronic health condition that makes it impossible for me to work full-time, and I am extremely aware of how dependent I am on the support of my family and my husband. We should guarantee all Australians the ability to live safely, with the capacity to access the funds and therapies they need to be productive members of society. The NDIS makes this dream a reality.

I am also watching my best friend navigate the difficult process of finding support for her baby daughter, who has just received a diagnosis of cerebral palsy. She will be dependent in some way on the NDIS for the rest of her life, and it is heartbreaking to discover that the process of making the NDIS available to everyone has created a real gap in funding support. For children, this means that they cannot yet access the funds they need when they need it the most (which is as early as possible, to make sure they build strong and healthy bodies, and limit their need for future treatment). The slow and geographically limited roll out, and the problems it creates, also shows how crucial the NDIS will be when fully operational.

The NDIS, when fully available to everyone, will be a huge success story for people living with disabilities, and caring for people with disabilities, throughout Australia. For the first time, we have made it clear that these people are not alone with the hand they have been dealt by fate.

The NDIS is our collective commitment to support people like me, and my best friend and her daughter.

Thank you for considering my submission.

41

Janis Clague

(My name is Janis Clague, Taylor's grandmother. I'm writing this on his behalf.) Taylor is blind, autistic & epileptic.

With the funding Taylor received last year, 2016, he spent two days a week at Breakthrough learning independent living skills, people interaction, physical development, social skills......He has progressed very well & is continuing this training this year.

He studies music at Sound Sculptors Studio twice a week, learning to play the drums, piano, & use his voice. He has been learning drums for several years & is very adept. Piano he started last year to settle his brain activity, develop his fine motor skills, & help his focus. This has been a struggle but he has learnt how to use the keyboard, where all the notes are, & can play several songs. He's learning how to develop his voice - enunciate, articulate..........He is part of the Sound Circle Can Do Programme through Disability Matters one day a week..........It's important that Taylor stays busy & is learning & testing his ability, & this last year has helped him develop enormously, whereas school was a bit of a waste - although he was in the Special Education section, there was no special curriculum for someone with his disabilities.

42

Jessica Millen

I'm not sure if I'm even allowed to write this because as it stands we are about to submit our third round of forms to try get some funding for my son. He has severe verbal despraxia, fine motor skill issues as well as some behaviour issues and severe learning difficulties. He really needs needs the extra help which this funding would do if he did get it but they keep telling me he doesn't have a disability and this won't be an ongoing issue, like they can tell! Of course it's going to be on going because he needs extra support which he isn't getting yet I'm reading stories from people who have said their kid is getting social funding so they can attend concerts and go out for tea etc? How is this using funds wisely? What about the people like my son who really need it? I'm so disappointed with this whole situation and set up more needs to be done to screen the people who are already getting funds

43

Karen Wakely

We began implementing our plan in Jan 2016. In a little over 12 months, the change it has facilitated has been extraordinary.

For the first time we have been able to access meaningful therapeutic supports. Previously therapy was only once a month, and was inadequate for gaining any momentum. Now we access either psyc or occ therapy every week, and it has been far more effective in developing the social and practical skills needed for independent living. For the first time, my child is beginning to successfully participate in mainstream community activities.

Watching the way in which the psyc works with and responds to my child has also been of immense value to me as a parent. He has modelled strategies that have helped me to adopt more effective responses to difficult situations.

We have been somewhat isolated as a family, with all other family living overseas or interstate. Outside of school, there were few other adults in my child's life, but I can now hold over difficult issues to discuss with my child at therapy in a supported environment, and we are actually making headway on issues that we have been struggling with for years. Therapists help me to reinforce expectations of respectful behaviour, and this provides support to me as a mother that I have not had before.

There is room for improvement in the way plans are structured. We have 3 goals, which tend to duplicate each other. Only 2 of them identify strategies to achieve them, and there are no KPI's. We have had our difficulties with the planning process, and it is still not all that clear to me what the objectives of the NDIS are, and what it will/won't fund, but overall our experience has been very positive.

I am beginning to see a more positive future that includes a greater prospect for independent living, and may also include employment.

44

Yuri Gregorian

I don't got too much to say you. It’s just the NDIS is a little hard to get my head around. I have no idea if I’m eligible or not and have no idea how to get through all the paper work and other stuff to join it. It would be much better if it worked just like the disabled job finding people where I have a disability pension so I can just show up, sign a few papers and get on with it............I think it might save money that way, it’s not like Centrelink don't put you through the ringer is it so I don't see the need to do it twice. Sure, people that don’t got pensions need to get checked out I guess. The least you could do is have people whose job it is to help people do all the paper work and stuff??

45

S Lawson

The NDIS means nothing to our family yet - it is yet to commence in our region. It does however promise three things:

1. The NDIS promises to be an umbrella, a gateway, for the multitude of services, equipment, and personal support hours we currently access through countless other mechanisms and providers.

2. The NDIS promises to place that umbrella in our own hands.

3. The NDIS promises to recognise our changing needs over time, whether that be due to the degenerative nature of disability, or the changes in our family as we grow/age.

We look forward to its arrival in our region, so we may continue to participate in the community, in the workplace (as taxpayers), and as parents, in an equitable manner.

46

Brian Stanton

Hello,

My son is a 27 year old with multiple, complex disabilities that leave him with a range of behavioural disorders resulting in confusion, anger, aggression, violence, property damage, self-harm and injury to other persons.

As such he is "deemed" not suitable for group homes, where the potential dangers to other "customers" would be too great.

My son absolutely has to have "one-on-one" supervision and management at all times simply to control his rages and meltdowns that occur on a regular basis.

My son is still at home with his family. This has proved very debilitating to all concerned, as we are often faced with a "war zone."

I am my son's Primary Carer - I am 68 years old this year, with heart/health problems.

We have been "trying" to have my son placed into permanent care with providers in Brisbane for over 12 months.

Attempts have failed thus far.

THE PROBLEM is, for my son to have adequate, safe and effective care in his "own home" he has to be the single occupant with a Carer to look after him, and this will cost in excess of $320,000 PER YEAR.

Disability Services Qld are not prepared to provide this funding.

So I am forced to keep my son at home until funding for 1-on-1 is available, as a group home would certainly result in injuries, if not fatalities.

Caring for my son in the home environment is extremely taxing , dangerous and simply not acceptable.

Will the NDIS be able to fully fund the requirements for my son and those like him?

My son requires in excess of $320,000 p/a just for support workers.

He also requires adequate funding for therapies and a host of other needs simply to keep him going.

How will the NDIS cope with this huge, critically needed, funding demand - especially when it is spread out over all of the needs base?

Life can be "hell" at times and full of terror caring for my son at home - but how can I subject other "clients" to this "clear and present danger."

47

Bruce Wilson

hello,

just briefly.

i have been a high level quadriplegic for the last 34 years and i currently receive only a fraction of what i need in terms of care, in order for me to have some quality in my life.

i currently rely on people giving up a lot of their time so i can just manage. i have a lot of pain which dictates to me what i can and can't do most of the time. pain doesn't seem to get mentioned very often.

i believe the NDIS can change my life considerably so that i am not dependent on 'charity' and i can rule my life again. i want my life back as much as possible doing what i want, when i want. it's all about funding. give me enough and i'll be happy. simple as that.

over to you NDIS.

Bruce.

48

John Neve

An ndis is a barometer of a truly compassionate western society that cares for all the members of its community without regard for their circumstance

49

Carly  Foat

The NDIS has not yet been rolled out in our area of Gippsland and isn't due to be until 2019. I am feeling very anxious about this. My son is 3 and he Angelmans Syndrome- he requires full time care and around the clock. He doesn't walk or talk and sonhis needs and wants rest heavily on our shoulders. Feeding, toileting, sleeping and getting around as well as suffering Epilepsy are all difficulties of each day!! I want the NDIS to help take the financially AP burden off these things because it is sometimes stressful enough just caring and worrying about him day to day.

50

Narelle Polley

We have 26 year old Down Syndrome sons that live at home with parents on our dairy farm. They have been on NDIS since last September and we are definitely not better off. We live 30km away from services and their Maccas work which they love just as they do the farm. Their social outing had to be cut back due to transport costs and I have had to do more transporting. They both need social times with being isolated on farm. My health has not been the best and have two operations coming up, their father works seven days a week running two dairy farms so he is tied up and has not the time to help with transport & support. We are also having trouble with service providers to have the time and staff to do the extra workload involved in admin with NDIS. NDIS support in our area are very un informed with everything and very little support when you go to them. Good staff though they are not getting correct and precis